Hebephrenic Schizophrenia: Disorganized Thinking

Medically Reviewed by Shruthi N, MD on November 14, 2024
18 min read
Convincing a Loved One to Get TreatmentDana Pettaway’s son had paranoid delusions and auditory hallucinations, but it took some tough love to get him treated. Several hurdles made it difficult. 248s

[MUSIC PLAYING]

JOHN WHYTE: Hello, I'm Dr. John

Whyte, the chief medical officer

for WebMD.

Schizophrenia is a chronic brain

disorder that affects how

a person thinks, feels,

and behaves.

And it requires

lifelong treatment.

With medication, many people

can lead

productive and rewarding lives.

But getting diagnosed

and treated is often difficult.



I'd like to introduce you

to Dana Pettaway, who can share

her experience as a caregiver

to her son, who was diagnosed

with schizophrenia just

after high school.

Dana, thanks for joining me.



DANA PETTAWAY: Hi, John.

Thank you for having me.



JOHN WHYTE: What were

the challenges to getting

the right diagnosis

for your son?



DANA PETTAWAY: Yeah, just

after my son graduated,

he started to have symptoms

of paranoid delusions

and auditory hallucinations.

He thought that he needed

to leave the country to get off

the grid.

And he thought we had cameras

in the house.

He spoke a lot to himself.



And so therefore, I decided

to try and seek mental health

help for him.

But I had no idea how to do

that.

Also, he didn't really believe

that he was sick,

and so he spent a lot of time

just convincing them

that he just had an alcohol use

disorder or a substance use

disorder.

So they really weren't sure

exactly what he had.



Also, he hid his symptoms.

The doctors gave him differing

diagnoses.

He started out

with unspecified psychosis.

And then finally, we found

a diagnosis that was

correct of schizophrenia.



JOHN WHYTE: Tell us how you were

able to get your son

the treatment he needs.



DANA PETTAWAY: At first, it was

very difficult.

He would disappear.

He would be defiant.

But I resorted to bribery,

telling him that he could have

money, pair of shoes,

what have you.

And then also, I had to use

tough love.

I had to actually kick him out

of the house,

so he was

homeless for a little while

until he finally relented.



When he was hospitalized

in involuntary holds,

he would not sign ROIs so that I

could let them know what was

going on with him.

And so he would languish

without medication

and without treatment,

because as an adult,

he didn't have to accept

treatment, even being

in an involuntary hold.

And the law just really doesn't

allow for a caregiver

to advocate for their child

as an adult. So it took a lot

of doing to finally get him

assistance.



He finally realized that he

needed to do something.

So he agreed to go to treatment.

And the treatment that he

received at that point

was through psychiatric help

and medications.



JOHN WHYTE: Dana, what's

your role as a caregiver?



DANA PETTAWAY:

So as a caregiver, I basically

do everything.

He's an only child,

and I'm a single mother.

So since he had not started

going to college yet,

and he hadn't started going out

on his own,

I was responsible for his food,

clothing, and shelter,

and an additional burden

of making sure

he got medications, got

to his appointments on time,

and that he also got

additional support group

help as well.



JOHN WHYTE: What advice do you

have for other caregivers?



DANA PETTAWAY: Other caregivers

that are dealing with this

should know that it's OK to not

be OK.

It's also OK to seek help.

Additionally, getting

psychoeducation, really learning

what mental illness is all

about, and seeking out

local agencies for support.



JOHN WHYTE: Thanks for sharing

your story with us.



DANA PETTAWAY: Thank you

for having me.



[MUSIC PLAYING]



<p dir="ltr"><span>John Whyte, MD, MPH</span><br/><span>Chief Medical Officer, WebMD</span><br/><span>Dana Pettaway</span><br/><span>Parent and caregiver for child with schizophrenia</span></p>/delivery/aws/86/94/86946756-e2ab-483f-94f2-cac912600fd6/0f1cce91-d3db-4f29-98f5-360852db8e4b_399055_1_Convincing-a-Loved-One-to-Get-Treatment_09292023_,4500k,2500k,1000k,750k,400k,.mp409/29/2023 12:00:00 PM00photo of dana pettaway/webmd/consumer_assets/site_images/article_thumbnails/video/schizophrenia_caregivers_champions_of_change_video/1800x1200_dana_pettaway.jpgb42bf549-4612-4781-b21c-133b797a7d5a

Hebephrenic schizophrenia, also known as disorganized schizophrenia, is a type of schizophrenia that mainly shows up as disorganized thinking, speech, and behavior. People with this type often have trouble organizing their thoughts, which can lead to behaviors that seem random or out of place, like laughing during a sad moment. It can also affect your speech, which often makes it harder for others to understand you.

Disorganized schizophrenia vs. paranoid schizophrenia

Paranoid schizophrenia is an outdated term for a type of schizophrenia that involves strong paranoia and delusions. Since 2013, psychiatrists have defined schizophrenia more broadly as a mental health disease, with a range of related types that cause psychosis. Disorganized schizophrenia is one of these types. Unlike other types, people with disorganized schizophrenia usually don’t have hallucinations. Instead, they show disorganized behavior and speech. 

 

Researchers don’t know exactly what causes schizophrenia, but they suspect that changes in the brain’s structure and chemistry play a role in the disorganized thinking that often shows up with the disease. These changes could include issues with brain development, an imbalance of important brain chemicals, or problems with the networks connecting the different parts of the brain.

While the exact reason for these changes aren’t fully understood, scientists think that things like your genetics (including a family history of the disease), using certain drugs, stressful life experiences, or complications that can happen during pregnancy might increase your chances of developing schizophrenia.

A person with hebephrenic (disorganized) schizophrenia may have the following symptoms:

  • Disorganized thinking or speech patterns
  • Unusual reactions to situations, called “negative symptoms,” where a person seems emotionally flat or disconnected
  • Facial expressions that don’t match a situation 
  • Struggling to focus or complete a task 
  • Behaviors like wandering aimlessly or laughing to oneself

Disorganized thinking usually shows up as scattered, illogical, or hard-to-follow thoughts that make conversations difficult. For example, someone might start talking about what they had for dinner, then suddenly switch to an unrelated topic. Their responses can also veer off topic: When asked a direct question like “What did you do this weekend?” they might answer with random or unrelated details. Disorganized thinking can also make people speak in ways that sound like “word salad,” where they use a mix of words that don’t form clear sentences. 

Disorganized thinking also affects how people socialize. Because their brain works differently, a person with disorganized schizophrenia may miss social cues or not be able to connect the right emotions to the situations. As a result, someone might laugh or become agitated in situations where others are calm or serious.

Disorganized thinking on its own is not an official diagnosis, but people with symptoms of it can be looked at by a doctor or mental health care specialist for schizophrenia. There aren’t any specific tests that can diagnose schizophrenia, but your doctor will do a mental health assessment by asking questions about your thoughts, moods, and habits and observing your behavior. 

Doctors may also perform a physical exam or order image tests, blood work, or brain activity tests to rule out other conditions.

Disorganized schizophrenia diagnostic criteria

To be diagnosed, you must have at least two of its main symptoms of schizophrenia for more than a month. These symptoms can include false beliefs (delusions), seeing or hearing things that aren’t there (hallucinations), disorganized thinking or speech, unusual movements, or losing the ability to handle daily tasks. The symptoms also need to significantly affect your relationships and day-to-day life. 

While schizophrenia can’t be cured, the disorganized thinking that it can cause it is usually treatable with a combination of the following: 

  • Medications: Your doctor may prescribe antipsychotic medication, which helps change how the cells in your brain communicate with each other. These medications can be combined with others to better manage your symptoms. 
  • Therapy: Talk therapy can help you learn new thought patterns and address other challenges that may come with schizophrenia, like anxiety or substance use. 
  • Social skills training: This type of training helps you improve your communication, gradually preparing you to participate more in day-to-day activities. 
  • Electroconvulsive therapy (ECT): This treatment uses electrical currents to stimulate parts of the brain and improve brain function. Doctors typically only recommend ECT if other treatments haven’t worked.

Schizophrenia affects everyone differently. There may be times when your symptoms worsen, but there can also be periods where they’re much lighter. Taking care of yourself — especially during low periods — can feel like a challenge, but the following tips may help: 

  • Take your medication. If your doctor prescribed medication, taking it as directed is the best way to manage your symptoms — even if you start feeling better. If you have any side effects or concerns, talk to your doctor about other options.
  • See your doctor regularly. Regular checkups keep your treatment on track and allow for changes to your care plan when needed.
  • Avoid drinking and drugs. Alcohol, drugs, and even nicotine can interfere with your medication and make symptoms worse. If you need help quitting, your doctor can connect you with resources.
  • Set goals. Setting realistic goals for your treatment can help you stay focused, track your progress, and build confidence.
  • Learn relaxation and stress management techniques. Practices like deep breathing, meditation, or exercise can help with stress, making it easier to manage some symptoms.
  • Join a support group. Connecting with others who understand your experiences can offer emotional support and helpful tips for living with schizophrenia. These groups may also be able to help you access resources like affordable housing and transportation. 

Disorganized schizophrenia can be tough on friends and family, too. If someone you know has been diagnosed, a good first step is to ask how you can support them. Offering your understanding and connection can help them feel less alone in handling their diagnosis. Encourage them to stick with their treatment plan and keep up with doctor visits.

When talking with someone who has disorganized thinking, avoid judgment or arguments. Instead, stay patient and keep the environment calm. Since people with schizophrenia are more likely to die by suicid00e, call for help right away if they mention self-harm.

Consider joining a support group or finding resources for caregivers. This can make it easier to care for yourself while helping your loved one.

Hebephrenic schizophrenia can be a tough diagnosis for both individuals and their loved ones. While there’s no cure, it is possible to live a happy and fulfilling life with the right treatment. If you or someone you know has schizophrenia, keeping up with regular doctors visits and finding extra support, either through a support group or social services, can make managing the condition easier. 

Is "word salad" a schizophrenic symptom?

Schizophrenia causes disorganized thinking, leading to scattered and disconnected thoughts. This can show up in speech as “word salad,” where sentences are spoken without clear structure or meaning.

How do you spot a schizophrenic episode?

If you notice strong symptoms like hallucinations, delusions, disorganized thinking and speech, or unusual behaviors, it may be because of a schizophrenic episode. If someone shows these signs, especially if they seem disconnected from reality or mention self-harm, seek help immediately.