If you’ve been recently diagnosed with RRMS, one of your top questions is probably how fast the disease will progress. I know it was one of mine. Unfortunately, there’s no set-in-stone answer. RRMS affects people so differently. But here are some things to do before you see your doctor.

“Prepare in advance. You may be traveling for several hours to see your RRMS specialist. You want to conserve your energy as much as possible.”

Research your doctor. You’ll want to make sure that they’re a multiple sclerosis (MS) specialist. That means they’re a neurologist whose practice is focused on people with this condition. They usually have better knowledge and access to treatments, including clinical trials.

Learn more about RRMS. There are four types of multiple sclerosis. It’s important that you understand exactly what RRMS is. This will give you a better sense of what to expect with your prognosis. One good place to start is the National Multiple Sclerosis Society. You can also ask your doctor’s office for suggestions. 

It’s important to note what symptoms you have and how long they last. It also helps to prepare for doctor visits in advance. 

You’ll likely have a lot to cover during your visit. Your doctor will want to know about your symptoms and how you’ve responded to treatment. Let their office know in advance you want to talk about the progression of your RRMS during your appointment. This way, they can carve out time to answer your questions – and ask some of their own.

Tell your doctor if your relapses are becoming more frequent. This may be a sign your RRMS is progressing. 

You may need a different treatment to help slow it down. Also let them know if you feel stressed or need more support. 

Personally, I find that stress is a trigger for my RRMS. More frequent flares could mean your treatment isn’t fully working or that your RRMS is starting to change. Your doctor may suggest switching treatments to slow things down. 

Here are some tips on when to speak up.

Before you leave your doctor’s office, book your follow-up appointment. You’ll need it to monitor your RRMS. Once you’re home, track your symptoms. You can do this using a written journal, or via an app on your smartphone. 

Let your doctor know right away if you notice any change in symptoms. If they referred you for physical or occupational therapy, book those appointments. These providers will help you make the most of your mobility. It’s also important to stick to your treatment plan and take care of yourself. 

Focus on a healthy lifestyle. If you eat a healthy diet, exercise as much as you can tolerate, get enough sleep, and manage stress, you’ll feel better and possibly even slow down your RRMS’s progression.