You’ll live with RRMS for many years. So, it’s important to have a good relationship with your doctor. The best way to do that is to give them as much information about you and your symptoms as you can.

“It’s important to prepare for your follow-up appointment. Your doctor isn’t a mind reader. You’ll need to tell them how you feel so that they can know if your treatment is working.”

It can be hard to remember things when you have RRMS. It helps to write down any questions, symptoms, or other concerns. Before all my visits, I use my iPhone to jot these down. I use the notes app, so I can easily find it. I write down questions, new or worse symptoms, and anything I notice that’s different. If it’s a symptom, I also try to note when it started, how long it lasted, and what I think may have triggered it. If I’m up for it, I also think about how I'll describe my symptoms and concerns. My doctor has limited time, and I want to make sure I’m as concise as possible. Here some other suggestions as you get ready for your appointment.

You may want to pack a notebook. I always take something to write with when I go to my doctor’s appointments. This way, I can have a record of what they tell me.

The night before my visit, I get everything ready. It helps to plan in advance. I only have so much energy every day. I don’t want to waste it in the morning trying to figure out what I will wear. It’s too taxing, both physically and emotionally. 

Follow-up visits are very important. Your doctor will get a better sense of how you feel and if treatment is working. You’ll be able to let them know your thoughts, too. It’s important your doctor addresses all of your questions and concerns. Ask them if you can record the conversation on your cellphone, to review later. If you can’t, take notes. The key is to feel comfortable with your doctor. After all, you’re trusting them with your care.

When I see my doctor, I’m not shy. If they say something that sounds like gibberish, I ask them to break it down. It’s your body – you need to know what they are talking about.

If you’re still having flares or worsening symptoms, it might be time for a change. RRMS isn’t one-size-fits-all. Ask your doctor if there’s a more effective option.

Here are some tips on when to speak up.

When you leave your appointment, you may feel a little overwhelmed. That’s OK. You’re processing a lot of information. Review your notes, and keep tabs on your symptoms. If there’s something you don’t understand, call the office for clarification. Keep a log of how you feel in between appointments. Note when a symptom happens, possible triggers, and what makes it feel better or worse. This is important information for your next visit, especially if you’ve recently switched treatments. If a new symptom persists or gets worse, I call my doctor. 

And don’t forget to take care of yourself. Depression is common with RRMS. It helps to spend time with family and friends. You can join a support group for people with MS if you want extra help. Your doctor’s office may point you to one, or you can find one through the National MS Society.